To be frank even with my first victory I realise that has to be paid for. A half an hour session with the physio costs two hours sleeping as just the simple things tire me out. So when when I wake up i’m ready for lunch and I get the usual calorie-counted meal and the euphoria of the previous physio session has worn off. There is a serious depression setting in and that is not made any better by the thought that I feel physically wrecked and I have no energy at all. Their follows a few moments of tears that feel a bit self indulgent to say the least but I snap out of it by just looking round the room. The ward is full of people who are worse off than me and all the medical staff here are reminding me that I’m lucky even to be alive.
Then it hits me….and the tears come running down now…….I realise I am lucky
Lucky to have friends…..
Lucky to have another chance….
and lucky to be alive.
It’s a hard life ahead and I can’t imagine what life will be like, but today it’s about counting blessings and maybe that’s a part of seeing things differently.
Another day, another physio session and another attempt to move my arm. Today I am laying down on my back and the physio is lifting my arm at 90 degrees to my body. This looks like a horizontal nazi salute and the fact that I can think about that is a good thing as my attempts to complete this task ends in miserable failure. To distract me the physios help me stand up and this is more positive and I manage to stand and practice locking my knee, something that is preventing me standing unaided. Whilst this progresses I am acutely aware that I have no real mobility. The work I do with the staff now will determine my life for the foreseeable future. Whether I return to a vaguely normal life is being decided now and have to maintain my focus.
Somehow and I don’t know how, I manage to lock my knee and hurrah I’m standing properly. I actually shout with delight and those that know me will tell you that I have a big mouth. So it happens that a couple of nurses misinterpreting my screams rush in to find out what all the noise is about. Having achieved that feat we try the arm movement again and bouyed by my ability to stand up, try even harder and now laying down I can do a nazi salute.
Only in this context would I be happy doing that and to be honest it lasted 3 seconds. 3 of the most joyous seconds of my life. An indication that I may be able to at least start to move my arm, A small, hard won victory after my devastating illness.
This day will be seared into my mind and I have promised myself I will remember my first real victory on my passage back to normal life.
Anyone who has had to suffer a prolonged stay in hospital knows that a visit from the nearest and dearest is absolutely vital. One, to keep up the moral and two, to return you to a normal person after the onslaught of institutionalisation that comes with being ill and in the care of others. Today, although i’ve had visitors in the previous days, I’m inundated with those closest to me and it’s a godsend.
The passage of the day was difficult as everyone is emotional and as serious as my condition is I’m petrified of giving them more to worry about. So it’s a case of “putting a brave face on” and smiling. So when all the hubbub dies down the smile vanishes and the books they’ve bought me lie unread and I’m coming down hard. That descent is not made easier by the opening ceremony of the Euro championships which don’t include England. Thanks to the useless Steve McClaren. What all England fans will remember is the umberella and I’m trying to think of a metaphor for my condition but am struggling to find one.
The evening closes with me doing my exercises on my hand with frustration being the winner. My arm and hand stubbornly refuse to move and as I strain and strain the cramps in my leg begin. Eventually when I’m exhausted to the point of tears I give up.
I fall asleeep to await another day, and maybe another set of frustartions
In hospital everything is a routine and once you get your head around it you begin to realise what institutionalised means. My stomach began quite quickly to get a pattern around hospital meal-times. This was strange as I’ve always had a difficult relationship with food, and the rigidity was awful at first.
At 10 every day, it’s physio time. Today the aim is to stand up again and it’s so hard. My knee wont lock and its a struggle to keep my balance complicated by a light headedness that I’ve experienced since my stroke came. However after some time it begins to get easier and I whoop with delight as I rise from a standing position and stand up un-aided.
This joy is short lived as I realise how tired I am and that this effort must be paid for. It’s hard to explain but the mere fact of standing has exhausted me. I was an active guy so getting used to standing up and being exhausted is really dis-orientating, in addition to the fat that I still cannot move my arm or hand. However my chat to the Emma my physio is greeted with a “one day at a time” cliche and I’m taken back to my bed and I can rest while I wait for the tea trolly which appear at 11.00 am on the dot!!!!
As I gently nod off I begin to realise that for someone who used to be a social work manager, I’ve just been cheered by the revelation that I’ve just learnt how to stand up. My life is truely upside down.
Just had to post that I am from today a published author………
You can download a sample from here. Please help your self
Next morning, after breakfast the physio’s arrive and I’m hoisted to my feet and placed into a wheelchair. My physio is determined to get me working on my left arm. She also explained that whilst it’s good news that I’m getting some feeling back in my legs, this will come at a price. For the next few weeks I’m likely to experiencing muscle spasms and they will be painful. So it turned out, but thats for later. Today I was given a task that had me completely in tears, with frustration. It left me dizzy and with a headache. I was asked to move my thumb. Just my thumb. Imagine your hand and the complexities in volved in picking up a pencil or some change from the counter. You do it without thinking right? Now imagine trying to do that and nothing happens. Nothing. I was scared and the harder I tried the more tearful and frightend I became. Yet nothing moved, my arm was just dead flesh hanging from my shoulder. The physios were manipulating it and I was trying might and mane but nothing worked. After half an hour of this the physios returned me to my bad and defeated and crushed by the effort and the failure, I retreated into a deep sleep. The other thing I need to tell you is about the tiredness, a stroke essentially damages your brain, in some instances parts of it will die. Therefore your brain has to work harder to do the things it used to do, and that costs you in energy. The tiredness is a killer and a short physio session has therefore to be followed by a long deep sleep.
Sadly this is interrupted by the spasms that the physio had previously warned me about. and they are stunningly painful and its like having massive cramps that last mercifully a short time. All in all a frustrating day, with progress in my leg marred by pain, and progress in my arm non-existent. Later I have visitors and they are kind and bring me magazines and books. I try to read and again, I’m frustrated in my efforts, with brings a fresh bout of tears testing my determination to walk out of this place. I’m also dying for a cigarette, one of the reasons I’m here in the first place. So all in all not the greatest day in my life.
Waking to the sound of nurses knocking out a breakfast I enjoyed a wierd feeling. My leg was tingling all over and I could move my toes. The charge nurse examined it and noted it down and for the first time things looked less than bleak. Ever since my stroke the professionals had told me that I may recover movement naturally as well as having to work on my physio and I was so relieved by this small progress.
However, the realities of being partially paralysed began to come to me a little later when I needed to have a wash and get changed after breakfast. Yes a nurse gave me a bed bath, and for a man who pubescence was dotted with first screenings of Carry On movies the comic and other expectations were high. These were quickly dashed as the nurse involved was not a scantily clad, large breasted blonde but a big geezer named Raj. It was beginning to dawn on me that the path that my life was taking was not going to be a complete bed of roses. Having said all of that Raj was the complete professional and made me feel cool even when the inevitable scrub of the back sack and crack reared its ugly head, Thank god.
Then my first real round of physio began and I realised the extent of my journey back to full mobilit was going to be long. I had to try and stand and nothing happened in a way like it used to. The staff hoisted me to my feet and I realised that I couldn’t lock my knee and my left leg was shaking uncontrollably. At this point I also had to deal with the reality that my arm and hand was not moving at all.
Some progress made but lots more to do.